My Nonprofit Reviews
kath.flynn1
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
CFRI saved my life after my son was diagnosed with CF. As time went on, and I learned all I could from them about new treatments and care for children with CF, it really impacted my son's life. He's a healthy 21 year old getting ready to graduate college. Thank you CFRI!!
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
CFRI is awesome. Donations fund research not overhead! Support is there whenever you need it. Kindness and community abound whether you live one mile or 3,000 miles away. The educational conference for CF adults, parents and caregivers is of particular interest, and always exceeds expectations. I became involved when my son was born with CF 19 years ago. The people at CFRI got me through some tough times and provided the education I needed to be the best possible parent and advocate I could be for my son.
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I've personally experienced the results of this organization in...
how educated our whole family has become about CF. We advocate for the best possible care that we can get for our son.
If I had to make changes to this organization, I would...
Find an unlimited supply of volunteers for them!
