My Nonprofit Reviews

When I received the genetic diagnosis of Simone, my son, it was like falling into an abyss. I didn't know anything about what Syngap1 was and at the time perhaps not even in Italy much was known. So I put a notice on the Facebook wall with a request to forward it to friends and acquaintances as I was looking for traces of other parents of Syngap1 children. Monica Dudley Weston was the first to contact me and introduce me to the other parents at the Syngap1 Foundation. Since then this Organization has been that bridge that has supported me and to which, even today after many years, I turn. Thanks to the Syngap 1 Foundation, I and other Italian parents created our National Association and connected to the whole Syngap1 world. I am and will forever be grateful to the work of Monica and the Syngap1 Foundation.