My Nonprofit Reviews

Our baby girl was diagnosed at six weeks old we spent the better part of a month through three admissions in three months before we saw any improvement! We traveled close to five hours nearly 12 times in her first year to get specialist care because there isn’t enough education for providers nearby and my daughter wasn’t getting better. She has been through 3 surgeries including two Supras, and a G-tube she’s been scoped more than a dozen times. She was on CPAP for many months, but through it all is a fighter. She is now 15 months old and running everywhere. This organization gave us the home to advocate for our daughter and someone to share our fears, questions and concerns with a community of people that knew exactly how we felt. This was during the hardest period of our life, we had others that knew what to say, and not make us feel so alone! It took almost year of tube feeds for failure to thrive before we saw improvement and several months of ongoing PT/OT and feeding therapy. Now our daughter is finally eating,breathing and playing and being the kid we always dream she could be. She is not perfect but the majority of her noisy now is her yelling for fruit. But I knew we couldn’t of done it without finding this organization that showed us how to fight through it with her. She is stronger than stridor. #toughliketorry