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carolcav

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1 reviews

Review for Diamond Blackfan Anemia Foundation, West Seneca, NY, USA

Rating: 5 stars  

The DBAF has been a life savior in helping our family navigate this chronic illness. My son was born 40 years ago with a diagnosis of DBA. We had no idea what this meant for our son and our family. As a mother I felt sad and so alone. i just wanted him to be a healthy and happy child. We had some tough times and I had difficulty getting answers as to what this meant for him. The DBAF was the most wonderful group that i could ever imagine. Thanks to finding DBAF and the wonderful Dawn Baumgardner she helped us find an awesome community and wonderful physicians that understood this illness. I don't know what we could have done without the support of this caring, well-informed group. My son is now able to handle his chronic issues with confidence knowing that the DBAF is always there to help him through some of his questions and his decisions.

Role:  Client Served