My Nonprofit Reviews

My mother took DES in the mid 1940's to prevent a miscarriage. My father was a pharmacist who believed in scientific progress. Imagine our horror when my sister's gynecologist in the 70's remembered her as the patient who had the symptoms described by the new research into the negative effects of DES on the daughters. Imagine our confusion and concern as it became obvious that the drug manufacturer knew that DES was ineffective and harmful. While my sister and I avoided the rare cancer, we have dealt with the results of DES: from the very early birth of her daughter, to miscarriage, to excessive medical treatment. And through it all, DES Action has been the beacon that provided us the knowledge that we needed and still needed to deal with and understand what it means to be a DES daughter. They provided so much information and advocacy support as well as research findings and even info sheets for our care providers
They have been in the forefront of prevention of further abuse by drug companies who misrepresent their products to the detriment of all. I would award them ten stars if that was allowed. I thank the staff and volunteers for their work.