My Nonprofit Reviews

My mom was part of the study at the University of Chicago in the early 1950s, when I was born. I didn't know that I was a DES daughter until the U of C contacted me for follow-up when I was in my 20s. As a biomedical researcher myself, I appreciate their efforts in tracking down those of us who participated in the original study, examining us, and keeping us informed of their findings ... while the funding lasted. Now, as I reach the age when life is taking its toll on my body, DES ACTION USA is my go-to for reliable information about what people like me are facing. In deciding to ignore this first intentional exposure of human development to manipulation by synthetic hormone administration, the Healthcare System has turned its back on the chance to gain valuable knowledge from a bad choice. Did DES exposure lead to my ovarian cancer? Are other daughters at risk? If so, they could be more vigilant and pro-active about the "digestive discomfort" that might have alerted me earlier to what was growing in my belly. Maybe talcum powder isn't the only culprit here ...