My Nonprofit Reviews

When my daughter's pediatrician told me that my daughter may have a syndrome, we were overwhelmed. We saw a neurologist who ordered tests, but we wouldn't get the results for 8 weeks. I couldn't wait, so I started doing research myself, narrowing down all the possible syndromes it could be based on her appearance and symptoms. The Chromosome Disorder Outreach website was so comprehensive and had way more information than I was able to find anywhere, and it was the most up-to-date compared to almost every other site I found. I was able to figure out that my daughter had Cri Du Chat Syndrome because of this organization, and by the time we got the results to confirm her diagnosis, we had already been able to start therapy because we found resources thanks to CDO. Thank you to this amazing nonprofit for making these resources available to all families and those in the medical field.