My Nonprofit Reviews

FSIG has been a huge source of information and even encouragement to my family over the years. Jack and his team are constantly updating everyone with the latest news for the Fabry community. The information cards are just one of the many aids that FSIG has that helps Fabry patients talk to new doctors and nurses. I personally have had many ask to make copies of the card. FSIG arranges meetings where we can interact with other Fabry patients and also doctors and other experts in the field of genetics. These meetings are especially helpful and important to families with a new diagnosis of Fabry Disease. You could read a whole library of books and it would not take the place of person-to-person contact and FSIG provides that.