My Nonprofit Reviews
grandmomBEV
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
I am very impressed & appreciative of the CFRI folks and all they do. I have a granddaugther who has CF .We have participated in their educational programs for 20 years. My granddaughter has benefited from the many programs resulting from their research grants .CFRI 's Educational programs & speakers have helped me do a better job in caring for our many patients with CF , like my Erin, in ourSpecialty CF Pharmacy. They have helped us in our care & know which medications are best, which pieces of equipment that are best for our patients. The expert's they bring to us with help gained from all their research. This could not be done without the grants from CFRI ., . This makes it a win-win situation for all in our CF family's community
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I've personally experienced the results of this organization in...
CFRI , with their researchers & educational programs have taught us in our pharmacy the various items & medications & treatments that make us a true specialty pharmacy & are the very best & newest out there. We are then able to pass on to our patients in our CF world, We have been here for 26 years . we started this when Erin was born & we were told she had CF. We didnt have a clue. CFRI educated us fully thru their many , many programs & the researchers who came to speak & teach. .
If I had to make changes to this organization, I would...
Have them known all over the USA, so more folks would know to contribute to their great cause..
