My Nonprofit Reviews

Syngap Research Fund is the patient advocacy group that is a literal lifeline to me and many other families. As a scientist, I am embraced and encouraged to use my creative insights to move treatments forward for people living with Syngap1-Related Intellectual Disability and the full menu of physical, cognitive, behavioral, and medical challenges that come with it. As a parent, I am welcomed, celebrated, and comforted by the other parents through sharing our journeys. Top tier for people needing support, top tier for people wanting to help out, and all money raised goes toward therapies, research, and building a treasury of Health Information and BioSamples specific to this community.