My Nonprofit Reviews

ebrimsek
48 profile views
1 reviews
Review for SynGAP Research Fund - SRF (SYNGAP1), San Diego, CA, USA
My toddler daughter was diagnosed with SynGAP-1 in February 2023. Within days, I was able to connect with SRF and even met face to face with the organization’s managing director in order for our family to learn more about this disease and begin to build a network of support. Since then, we have found a community dedicated to fundraising directly for research into treatments; sharing information about studies that we can participate in; and providing daily support to families afflicted by this disease. I am so thankful for SRF.
Role: Volunteer