My Nonprofit Reviews
Jeanette P.
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
After moving to N. California, I was looking for a Cystic Fibrosis support group for our family. We had two young children with cf, and dealing with the everyday aspects and expenses had taken a tole on our lives. Having no family here, we felt alone, but what a blessing it was to find the CFRI support groups and summer camps. Our children have grown many rich and wonderful relationships over the years because of the early camps. The camaraderie that is established by the on-line. and occasional meetings, has developed in to a family of 'cf siblings' that no other group can match. Without CFRI our children may have not been as healthy as they are partially due to the CF Conferences we have been able to attend. Each conference brings new and exciting treatments to the cf community and our family. Our "children" are now twenty five years old and almost thirty years old! What an accomplishment, all with the help of CFRI.
More Feedback
I've personally experienced the results of this organization in...
The value, thoughtfulness and caring each and every volunteer and employee puts toward helping people living with cystic fibrosis to live a productive and full life.
If I had to make changes to this organization, I would...
Give them more funding so they could branch out to people in the North Bay area of California and eventually all of the United States.
