My Nonprofit Reviews

My beautiful granddaughter Charlotte was born in 2020. Shortly after her birth she began experiencing seizures. She was put on many medications to control the seizures and nothing worked. When she had genetic testing we learned she has CDKL5 Deficiency Disorder. Consequently my daughter found the International Foundation for CDKL5 Research. I can't even imagine a world without the IFCR as they are working everyday towards treatments and a cure for CDD. I look forward to a better future for my grandchild because of the work the IFCR is doing. I am dedicated to helping my grandchild by donating, spreading awareness and volunteering. A cure for CDKL5 Deficiency Disorder is my life's goal and the IFCR is building a foundation through research and brings me hope.

Rose