My Nonprofit Reviews

My daughter has had kidney disease for decades and has always raved about the positive programs offered by Renal Support Network. This last year, I too have been diagnosed with kidney disease.

RSN offers many, many programs; however, one thing they provide head and shoulders about the rest is the advocacy group they host the Champions of Kidney Care. I have long been an active member of my local community and keep abreast of legislative issues. RSN offers nonpartisan legislative information for it's advocacy group. Participants are enlightened about the specifics of proposed legislation along with the pros and cons. Other groups, typically use lobbyist to get out information but with kidney disease it hasn't affected our brains! We are quite capable of understand and sharing the pros and cons of kidney disease and sharing how proposed legislature can affect our lives.

My son donated a kidney to my daughter. The Living Donor Protection Act has been proposed for several years offering protections for people who have donated an organ. No one who donated a kidney should incur any problems with their healthcare coverage after committing such a brave and selfless act.

Furthermore, the keeping oral medications out of the dialysis bundle was not a legislation I was fond of. I think it limits the medications that patients could be prescribed and they patient many not receive the best drug for them just because It's not in the bundle. It could also affect research of new medication because if there is no payment for new medications, what is the incentive for research.

People living with kidney disease are certainly capable of understanding the medical and financial circumstances of their care and should learn how being acting in legislation does affect you if a medication is not available.

I've learned to create a relationship with my local and state representatives to ensure that people living with kidney disease get a fair shake.

I'd like to thank Renal Support Network for informing me about all of these issues and creating a community of patients that are not only active in their healthcare but also the legislation that affects their healthcare.

What a GREAT nonprofit that offers so much to the kidney community!!! I would give them six stars if you added another!

My daughter has had CKD for 25 years. RSN has been so instrumental in her thriving with CKD! All the programs have helped her grow into a confident advocate for herself and others with CKD. Even during the pandemic, RSN went online immediately providing exercise, companionship, and support from others living with CKD. They offer online support groups twice a month and she never misses! She has also began crafting and reading again all because RSN offers these opportunities. Thank you for everything you do. You definitely give us hope!