My Nonprofit Reviews

Our twin babies were born in 2012. We were lucky to have a great pediatrician who discovered our littlest has chiari malformation. When we were given the diagnosis, I was told how to spell it and that we would see a specialist. The doctor told us he had seen 2 cases in his 40 year career. We found Conquer Chiari the following year, and have attended, now coordinate, our local walk every year. CC gave us hope, showed a brand new mama that her baby could be ok, and helped us find an amazing support system. We have met so many with chiari, even our next door neighbor (it’s more prevalent than you think), and are giving back to be part of the support for this community. I cannot express how much this organization means to us, and so many others. The donations helped fund research, education and awareness of chiari. It is being diagnosed more now with MRIs being more prevalent, which means our community is growing. But there is still no cure. Even brain surgery, like the one our daughter had when she was 4, does not cure this or mean your symptoms will cease. Please support Conquer Chiari and help the fight to find a cure!