My Nonprofit Reviews

I love MSU! This organization has the most helpful staff/volunteers in the world. People are passionate and energetic about the MSU cause. The MSU website helped me with unending amounts of information, that was easily accessible and understood. I had a horrible summer, of trying to get a diagnosis of myositis. Without the MSU website, I would have had no idea of how to treat my myositis and less social support as well (clubhouse). Here is my polymyositis journey: I started having light shoulder and hip weakness this year, however, I ignored the weakness until I saw a rheumatologist, who took out blood tests for antibodies for myositis markers this June. Then, after getting puzzling numbers back (3 categories were in the high range), I had to wait a month and a half or so to get MRI's of my shoulders and hips, to help confirm or deny a myositis diagnosis. Even after that, I had to get a muscle biopsy of two sites in my hip, and shoulder. The muscle biopsy took forever to read, because it was sent to the Mayo Clinic in Rochester. Finally, I have a diagnosis at the end of August this year (2022). Now, I am actively involved in the myositis community, trying to get help and help those that I can help with my knowledge and passion. This is one of the best charities out there. Super highly recommended!