My Nonprofit Reviews

Mohreena
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
I discovered CFRI about a couple decades ago after my younger brother was diagnosed with Cystic Fibrosis, a genetic disease. At that time, me and my family had never heard CF and soon learned that this diagnosis would change and greatly impact all of our lives. We had reached out to many organizations to learn more, connect with others and find resources and support to help us navigate our uncertain future and all fell short with exception to CFRI.
The staff was beyond friendly and knowledgeable, they instantly felt like family and treated us as such. They offer a wide variety of programs, classes, educational offering, and most importantly connecting community of a disease that is often very isolating. The love and support we have received from CFRI has greatly changed, enriched and positively impacted me and my family's life.
Being so moved by the work they preform; I was inspired to volunteer and dedicate my time to helping them fulfil their mission and support other families as they did mine. I have now been an enthusiastic volunteer for well over a decade, helping in many various capacities. CFRI also encouraged me to become an advocate at the local and state levels to spread awareness of various topics affecting the people of this community and sharing my stories and experience.
This wonderful and amazing organization has brought such purpose and joy into my life, it helped me find peace, support and the knowledge and tools needed to live with this disease, and I don't know what I would have done without them.