My Nonprofit Reviews

As a member of the wider aniridia community, I'm so thankful for IWSA. They are an excellent example of how a non-profit should be run. As I speak with parents of a newly diagnosed child with aniridia, it can be very difficult for a parent to discover that their child has WAGR instead of "isolated" aniridia. When that happens, it is so reassuring to know that I can recommend the IWSA to that parent, and to know that they will be fully supported in their journey by these amazing people.

I've had the privilege of working with some of the IWSA board members on other projects, and they are a fantastic group of people with a wealth of knowledge who take their role at the IWSA extremely seriously. The amount of time and volunteer effort they put into the organization is incredibly commendable.

I'm thankful for the IWSA and their tireless work advocating for and facilitating research related to aniridia and WAGR syndrome. They are a fantastic group of people doing amazing work in the rare disease world!

The IWSA is an excellent example of how a non-profit should be run. They've developed an amazing group of clinicians and researchers, and have engaged in collaborations with like-minded individuals around the world. Their work has helped so many people, both those with WAGR syndrome and those in the wider aniridia community. So thankful for this group of people and the amazing work that they do!

So thankful for the Vision for Tomorrow Foundation. My daughter has aniridia, and the research they help fund may save her vision down the road. The board members are professional and dedicated to helping those with aniridia and albinism. I'm thankful for the opportunities I've to collaborate with them to improve outcomes for people with aniridia!