My Nonprofit Reviews

In 2016 a family members daughter was diagnosed with OCNDS. At the time she was one of the first diagnosed with this rare condition and information related to this syndrome was not readily available. The family immediately began their search for more information and a treatment plan. They started a community where others with this rare condition could find love, support and answers. In 2018 they founded the CSNK2A1 Foundation, and in 4 short years the strides that this foundation has made are remarkable. They now hold an annual conference, multiple fundraising events throughout the year to fund ongoing research, as well as monthly family support calls, educational webinars, scientific round tables, and the list goes on. I volunteer at the annual golf event and am proud to be part of this community. Hopefully one day the research will result in a cure.