My Nonprofit Reviews

Since January 2022, I have had the great honor to serve as the Executive Director of the Neuromuscular Disease Foundation.

Before joining NDF, I had limited knowledge of rare diseases and didn't know anothing about GNEM.

in the past 10 months, I have not only learned a great deal about GNEM, but have been amazed by the dedication of the scientists with whom NDF works, all around the world, to advance research to help patients.

Likewise, I have talked to patients everywhere, NDF has a presence in more than 50 countries, and intend to do everything in my power the enhance their lives whilst we wait for a cure.

I have to add that NDF has the most remarkable board members, volunteers and patient advocates all of whom are dedicated to helping those with GNEM.

For all these reasons, I know that NDF is the leader in all aspects of scientific development and helping patients.