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acbredeson

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1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

When my daughter, Chloe, was diagnosed with tuberous sclerosis complex in 2010, the doctor told us to visit www.tsalliance.org for the most accurate information about the disease. Visiting that website was the best thing we could’ve ever done for Chloe. It guided us to some of the best doctors in the world. Thanks to the TSC Alliance, Chloe was able to start a new drug in 2012. That drug has shrunk tumors and cysts, and it has dramatically improved Chloe’s life. While she was originally expected to need a kidney transplant in her teens or early 20s, she now might never need one.

None of this would be possible without the TS Alliance.

Role:  Volunteer