My Nonprofit Reviews

I have been a volunteer patient advocate for the NDF since 2017. They help to engage, educate and employee GNEM patients. They give us a voice to ensure that we are a part of the decision-making process in finding a treatment/cure.

I do not feel alone or fearful anymore. I am now part of a community where we support and inspire one another.

The NDF works hard to improve the quality of life for those living with or looking after someone with our rare disease.

We’re really grateful for their passion and dedication.