My Nonprofit Reviews
Review for VHL Alliance, Boston, MA, USA
VHL.org has been a fund of information for us since my husband was diagnosed in 97 and my son in 98. I have even looked to this site to advise our family Dr. on what screening to do. The children's book was wonderful and has helped explained to our grandchildren how their little sister got VHL. Please keep us updated on any new procedures etc. as we look to you to keep us informed. Thank -you for all you do.
I've personally experienced the results of this organization in...
We have used info from VHL to advise my husbands DR of new screenings etc.
If I had to make changes to this organization, I would...