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libelder

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1 reviews

Review for PLATELET DISORDER SUPPORT ASSOCIATION, Cleveland, OH, USA

Rating: 5 stars  

The charity is the Platelet Disorder Support Association (PDSA)- and it's hard to know where to start. They do so much for the ITP Community, from maintaining a database of ITP Specialists by state that was an invaluable assistance to me when I recently moved, to the exceptional conferences they put on and beyond. They helped fund the research that led to the first ITP treatments not immune-suppressive in nature- since none of the immune suppressives ever worked for me they were able to put me in touch with a study for one such drug that provided me the first relief I'd ever had, nearly 20 yrs. after being diagnosed. That drug has likely saved my life. The educate patients, they educate doctors, they fund research, they help patients. They give hope, and more.

Role:  Client Served