My Nonprofit Reviews

Working with the Stiff Person Syndrome Research Foundation (SPSRF) is one of the best experiences of my life. We're all united in one mission: to find better treatment and a cure for stiff person syndrome (SPS). In keeping with this mission, we support each other, patients (diagnosed, undiagnosed, and not-yet-diagnosed), and their families. SPSRF is a glimmer of hope in a world that doesn't care about ultra rare diseases as much as it ought to.
This small but dedicated and mighty group of people managed tremendous feats in only a few years, including securing a grant from the Chan Zuckerberg Initiative, becoming a NORD Platinum member, and donating money for research into SPS. SPSRF has even better, bigger, and more ambitious plans in the next few ears, many of which are currently in motion. I can't wait to see where we go next, but I know it won't be short of greatness!