My Nonprofit Reviews

I've worked for more than 20 years in the nonprofit sector and can say with confidence that it has been an absolute pleasure being involved with such a driven organization! Their mission is clear and the work that supports their mission is intentional and powerful. I've had the honor of working alongside Tara, a Stiff Person Syndrome patient and leader in the SPS community. The organization raises awareness about the challenges and needs of SPS patients, shares valuable educational resources and supports research efforts for the rare and underfunded disease. While The SPSRF was created by Tara, the organization is now supported on a global level - a true testament to the need and timeliness of the work.

The SPSRF excels in building relationships within the SPS community, engaging with patients, caretakers, medical professionals and funders all with the shared investment of finding a cure for the Stiff Person Syndrome. The organization is strategically growing with transparency to the public which is a unique and appreciated operational trait.

It is a true honor to be a part of such a worth cause!