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JingPang

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1 reviews

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

Barth Syndrome Foundation is one of the most educational organizations that I have ever experienced. Things that benefitted me the most are the research updates and the various accessible seminars on the website. It is a very inclusive organization as it not only united the families but also united the researchers together. It has been a very pleasant time for me to work with Barth Syndrome Foundation, and I believe that it is making an enormous difference for everyone in need.

Role:  Professional with expertise in this field