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SallyDHA

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1 reviews

Review for Hydrocephalus Association, Bethesda, MD, USA

Rating: 5 stars  

The Hydrocephalus Association is making a huge impact in the lives of those living with this life-threatening disorder. I am the mother of a daughter born with hydrocephalus. She underwent about 8 brain surgeries before her 7th birthday; today she is a thriving senior in college. As a family, we dependended on the resources of HA. As she got older, our daughter connected directly with HA and learned to become her own advocate. I joined the Board because of my daughter and the many people I knew who were diagnosed with normal pressure hydrocephalus as mature adults. I am inspired by HA's leadership in generating more research and awareness of hydrocephalus.

Role:  Board Member