My Nonprofit Reviews

The NBIA DA works tirelessly to promote a sense of community amongst caregivers to individuals with NBIA. They also strive to raise money for research into these disorders so that we, as caregivers, have a path forward for our loved ones. I have been a part of this community for three years now and am constantly amazed at how dedicated they are in their efforts of promoting the community and raising money. We are so grateful for this organization.

I have had interactions with the NBIA DA for two years now, ever since my daughter was diagnosed with BPAN. As soon as I found them and signed up for their newsletter, I immediately found myself within a community of people who support one another and know what each other is going through. This was especially helpful to me in the beginning as I was just learning about what to expect with my newly-diagnosed child. Since then I have seen them rally and raise money and fund grants to promote more research that our kids desperately need. They are a group of hard-working and dedicated individuals with a common goal, and that has been so amazing to realize that I am not alone in this. They truly are a "Great Nonprofit"!