My Nonprofit Reviews

amykarakourtis
45 profile views
1 reviews
Review for NBIA Disorders Association, El Cajon, CA, USA
I have been impacted by the NBIADA for over 15 years. When my son was diagnosed in August of 2006 it was this organization that helped me get connected to other families. Since these diseases are rare, it was a comfort to know other people knew what we were going through. Our first Family Conference was a mixture of sadness at seeing up close how ravaging this disease is , coupled with such gratefulness that we were not on this journey alone. I am so thankful for the work NBIADA does.
Role: Donor