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eileenbakke

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1 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

Our son was diagnosed with VHL this year, and the doctors at Johns Hopkins referred us to the VHL Family Alliance. I have been very impressed at how responsive, compassionate, and effective this group is. They operate on a shoestring budget, and use every dollar they receive to fund research on better diagnosis, treatment, and a cure for VHL. In addition, they are a lifeline to individuals and families coming to terms with this rare genetic disorder.

I've personally experienced the results of this organization in...

their response to my inquiries and requests for materials about VHL

If I had to make changes to this organization, I would...

Nothing that I know of at present, except give them a million dollars!

Role:  Donor & donated to the organization.