My Nonprofit Reviews
eileenbakke
429 profile views
1 reviews
Review for VHL Alliance, Boston, MA, USA
Our son was diagnosed with VHL this year, and the doctors at Johns Hopkins referred us to the VHL Family Alliance. I have been very impressed at how responsive, compassionate, and effective this group is. They operate on a shoestring budget, and use every dollar they receive to fund research on better diagnosis, treatment, and a cure for VHL. In addition, they are a lifeline to individuals and families coming to terms with this rare genetic disorder.
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I've personally experienced the results of this organization in...
their response to my inquiries and requests for materials about VHL
If I had to make changes to this organization, I would...
Nothing that I know of at present, except give them a million dollars!
Role: Donor & donated to the organization.
