My Nonprofit Reviews
Review for Cystic Fibrosis Foundation Headquarters, Bethesda, MD, USA
The amount of forward movement in management and potential cures have offered a very difficult disease and piece of hope. My daughter has CF and she is doing fantastic. When she wasn't we were able to turn it around from the treatments that the research has developed. The only thing that could please us more is the day a cure is found. We are blessed to have CFF.
We were able to donate this last year to the Miles Stones for a Cure. We also got my and my husband's parents, both of my sisters and my brother to commit to five year donations. Having Boomer Esiason's foundation match the five year commitment all in the first year was truly inspired and made it possible to sell the family on joining. Keep up the creative work. That set of donations totaled around $150,000.
My only irritation is that donations (not done on-line) for the CF Walk don't get automatic receipts unless requested. It put out a bunch of my in-laws friends that will probably not donate again.
I've personally experienced the results of this organization in...
Fund raising. I have met with research facilities on my own. I want to make sure the money is supporting the best projects.
If I had to make changes to this organization, I would...
Receipts and thank yous for all donations.