My Nonprofit Reviews
AlNZ
Review for Nevada Center for Biomedical Research, Reno, NV, USA
This little organization changed the world for me by coming out with its paper published in Science magazine.I have suffered for nearly 30 years with ME/CFS and having the Whittemore Peterson Institute on our side fighting to legitimize this illness has meant so much.To have this disease is to have suffered in the most part with disbelieved and isolation with little hope of any change that situation.Now they give us all hope.
This is a very hard illness to understand from the outside as we look so well.But like a New car with no engine or battery as good as it looks on the outside we are going no where and nothing works the way it should.
As hard as the illness is and it is very hard and disabling its not helped by the lack of others understanding of just how disabling and hard it is.Hopefully we are a little closer to having the understanding we deserve as a result of the work of the institute and all its wonderful staff.
More Feedback
I've personally experienced the results of this organization in...
Giving me hope.Thats of far more value to ME/CFS patients than we have got in the past 30 years.By their advocacy for us all.In promoting understanding and progressing collaboration with other organizations to solve this disease.Seeing them speak out for us all and feeling like someone is on our side for once.
If I had to make changes to this organization, I would...
Like to see their bank balance increase and see that their applications for funding for more studies be approved.
