My Nonprofit Reviews

DES Action USA began as a struggling non-profit--not because it profiled a low-incidence condition--because the medical profession made this high-incidence condition invisible due to ignorance.
Mothers who took diethylstilbestrol in the 40's and 50's considered it a life-saver for their pregnancies and their children because it was New and Best at preventing miscarriage.
Early dosing was high, little was known by the prescribers of its ability to stay in the body AND accumulate during subsequent pregnancies. My mother suffered a miscarriage after I was born in 1948. She struggled with her next pregnancy and took DES and had a healthy boy. Her 4th pregnancy had some difficulties, so she received more DES. My sister was born healthy and life went on until my sister, Ann, reached puberty when she had abdominal pain and seriously heavy menstruation which resisted treatment until menopause.
In the 70's, Mother stumbled on DES information through this non-profit DES Action. Ann was confirmed as a DES daughter. Mother then understood why she was hospitalized one week every month during her 5th pregnancy in 1962, in which she also took DES and delivered a healthy daughter.
We all dug to find the news from DES Action USA. My sister, Ann Giblin, remained a member and later a board member until about 2013. The amount of times each one of us had to explain to OBGYN's what our hidden issues were were frustrating to all 4 of us. They just didn't know; it wasn't part of medical training.
Ann, RIP, was diagnosed with metastasized breast cancer in 2014. Remissed for nearly 12 months. Then it returned in her bones, and soon, tumors in her brain.
If she and my mother had been believed and cared for along the years, perhaps we would still have them with us.
Ann was a member who championed this non-profit, DES Action USA, throughout her life for Mother, for our family, and all seeking trusted information about reproductive health .
Thank You DES Action USA.