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1 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

VHL Family Alliance has provided information, inspiration, and assistance to my whole family. When my father died 15 years ago, very little was known about VHL. Now, because of the Alliance, physicians can connect with the latest information and studies. My physician, at OHSU, a fabulous teaching medical center, stays in touch and up to date with VHL.

Thank you, I'm grateful.

VHLFA deserves the award of $5,000 for progressing and making a huge difference in the medical world in such a fast trajectory.

Thank you,
Eva Sharlene Peters, PHD

I've personally experienced the results of this organization in...

Being tested, followed, and informed about my VHL. Having my sisters, my cousins, and my son genetically tested. Am participating in the studies and tissue bank donation program.

If I had to make changes to this organization, I would...

I would donate as much money as I could so that this work could expand, particularly in grants to physicians who are working for cures.

Role:  Client Served & I connected my physician at OHSU medical center with the association. She has kept abreast of the latest in studies and information about VHL. I am participating in providing medical information to the organization for studies. I have pre-donated tissu.