My Nonprofit Reviews

piowacket
Review for Myositis Support And Understanding Association, Lincoln, DE, USA
When I was diagnosed with Necrotizing Autoimmune Myositis in the summer of 2020, I felt very alone. It was at the beginning of the Covid lockdown and I wasn’t able to be near other people. I was researching my new disease as my strength was leaving me. I was bed bound within 2 months of my diagnosis. MSU was there for me first on Facebook and then with their zoom and Clubhouse support group meetings. I knew that I had a brand new family who supported me emotionally and gave me guidance about medication and treatment advise, suggesting foods and with exercise and breathing advise. I no longer felt alone. I feel very blessed that I found this amazing organization. I have chosen to raise money so that MSU can continue to give patients the money that they need for medical equipment, stair lifts, help paying medical bills and travel to medical appointments. I have been on the board of other organizations and can honestly say that I have never seen a better non profit.