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Michelle C

188 profile views
1 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

The VHLFA has been an endless source of knowledge for this very rare disease. There is power in knowledege which deminishes fear.
Thank you to the staff at VHL Family Alliance!

I've personally experienced the results of this organization in...

Resources regarding knowledgable doctors.

If I had to make changes to this organization, I would...

Figure out how to raise more money to fund research for a cure!

Role:  Donor & Donation of time and money.