My Nonprofit Reviews

My son was diagnosed with Chiari in 2014 at 2 years old, and 3 months later had 2 back to back brain surgeries. During this time we felt lost and alone. Most doctors and medical staff we talked to had never heard of Chiari Malformation so we were constantly having to explain it. After doing tons of my own research we found Conquer Chiari, attended our first walk in September 2015 and for the first time we felt like we found somewhere to belong. We shared our journey, found support, and life long friendships. We have been hosting our walk for the last 6 years and the community that has been built is like no other and people are starting to know the word Chiari! We continue to walk and fight to help raise awareness and funds for research to find a cure!