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Mary

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1 reviews

Review for Loeys-Dietz Syndrome Foundation, Baltimore, MD, USA

Rating: 4 stars  

We are so greatful that there is LDSF. We have received a lot of information from the website and people alike. The 1st annual conference in June of 2010 was wonderful. The information we came home with was just incredable. Please keep supporting this cause, our little girl is only 10 and we want her around for a long time. With out continous research it wouldn't be possible.

I've personally experienced the results of this organization in...

The support I have received from other families with children with LDS.

If I had to make changes to this organization, I would...

Update the website more often.

Role:  General Member of the Public & Learned about LDS.