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Chris A.4

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1 reviews

Review for Amyloidosis Research Consortium Inc, Newton, MA, USA

Rating: 5 stars  

So grateful for the information and support from ARC since my diagnosis in 2014. I had never heard of this disease and the information on the internet was just plain scary. Having ARC gave me a reliable, reputable resource to go too for answers. Hearing Isabelle's story was so inspiring to me and gave me hope when I truly thought I had none. Arc provided me an opportunity to not just be a patient but to also be an advocate to voice our communities need for new treatments and have those treatments delivered much faster at the FDA meeting in 2015. I cannot tell you what that meant to me and the gift of strength and courage that I didn't know I needed to face this fight. I would not be as informed or lifted up without the fabulous work of ARC.
Thank you for being in this fight with us, we honestly could not fight without you.

Role:  Client Served