My Nonprofit Reviews
Review for Amyloidosis Research Consortium Inc, Newton, MA, USA
So grateful for the information and support from ARC since my diagnosis in 2014. I had never heard of this disease and the information on the internet was just plain scary. Having ARC gave me a reliable, reputable resource to go too for answers. Hearing Isabelle's story was so inspiring to me and gave me hope when I truly thought I had none. Arc provided me an opportunity to not just be a patient but to also be an advocate to voice our communities need for new treatments and have those treatments delivered much faster at the FDA meeting in 2015. I cannot tell you what that meant to me and the gift of strength and courage that I didn't know I needed to face this fight. I would not be as informed or lifted up without the fabulous work of ARC.
Thank you for being in this fight with us, we honestly could not fight without you.