My Nonprofit Reviews

I first heard about the Diamond Blackfan Anemia Foundation in January of 2004. My son was in the PICU and the doctors told me that they believed he had Diamond Blackfan Anemia. They told me that if I was going to google it that they suggested I look at the Diamond Blackfan Anemia Foundation website. They said that is where I would find up to date information and correct information because there’s not a lot of places that have even heard about this illness. They have been such a wealth of information over the years and the support they give to the families is incredible. Because this is such a rare illness it is very easy to feel isolated and they make sure you feel like they are always a phone call or email away. When my son has to see a new doctor and they have questions about DBA I tell them to go to the website. They always say they learned more from the website than they did in medical school.