My Nonprofit Reviews
Garrett W.
Review for New Jersey Chronic Fatigue Syndrome Association Inc. (NJCFSA), Florham Park, NJ, USA
This is a great organization. They hold anual workshops which bring patients and experts together to socialize and learn about new treatments. They have an annual scholarship fund which helps a college student and also helps spread knowledge of chronic fatigue syndrome. It is run all by volunteers and they make a huge difference in peoples lives with the chronic illness ME/CFS. I look foreward every year in the fall to go to the conference.
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I've personally experienced the results of this organization in...
being able to feel a sense of community with people who understand living with CFS.
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2011
How did you find this group?
internet
Review for Nevada Center for Biomedical Research, Reno, NV, USA
I got sick with mono my senier year of college. I never recovered. It took 7 years of Dr.'s visits to get diagnosed with chronic fatigue syndrome(ME/CFS). It's been 10 years, I still live at home with my parents and my college degree is meaningless considering my poor health. The problem is general physicians and many specialists have never herd of ME/CFS.
The Whitmore Peterson Institute has helped illuminate this misunderstood neuroimmune illness with their ground breaking research. They have shown the world that this illness is real and people really are suffering greatly. The Whitmore Peterson Institute has given millions of people hope to hold on just one more day. I keep telling myself that there will be a light at the end of this tunnel all thanks to the WPI.
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I've personally experienced the results of this organization in...
They have done research that has sparked theworld wide interests of virologists, immunologists and scientists worldwide.
If I had to make changes to this organization, I would...
add various locations so it would be easier for patients access their medical needs.
