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Megan D.5

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1 reviews

Review for Amyloidosis Research Consortium Inc, Newton, MA, USA

Rating: 5 stars  

I found ARC after my mom was diagnosed with Cardiac AL Amyloidosis last summer, June 2020. I was terrified of losing my mom to this disease, so I looked for any resources or groups that were helping fund research of this historically understudied disease. Not only was I extremely impressed by the work ARC was doing, but there were plenty of resources and webinars offered as well that were very helpful in having our family become educated on what it means to have a loved one diagnosed with amyloidosis. Donations were lower last year with everything being virtual for ARC, so I decided to host a virtual concert series to raise money for the organization and help continue the important work on researching the disease. I am extremely grateful for the work that this consortium is doing to improve treatment, quality of life, and hopefully one day find a cure. Thank you to ARC and the entire staff of dedicated employees all coming together for a great mission and cause.

Role:  Donor