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owheeler

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Review for Amyloidosis Research Consortium Inc, Newton, MA, USA

Rating: 5 stars  

The Amyloidosis Research Consortium is an outstanding organization whose focus is on helping patients dealing with amyloidosis. Their website is full of useful information to help patients understand their disease, how to get treatment and what kinds of treatment is available including how to find clinical trials and treatment hospitals and other kinds of support. I love the patient stories. They have a hotline phone number if you want to talk to someone who can answer questions for you. And they have links to all kinds of webinars with amyloidosis experts who teach about the disease and who answer questions from the patients. I have learned a lot about this terrible disease.

Role:  General Member of the Public