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jeanniemac

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1 reviews

Review for Cure Vcp Disease Inc, Americus, GA, USA

Rating: 5 stars  

I’ve been involved with Cure VCP Disease since its inception. Patient advocacy is so very important. It has given me hope for a potential treatment. We hosted a patient & caregiver conference prepandemic and have United patients through monthly zoom calls. We have educated many medical professionals about our rare disease. We are working with researchers who have written a Standard of Care paper to assist those medical professionals when following a patient. In less than four years, Cure VCP Disease has made tremendous strides!

Role:  Volunteer