My Nonprofit Reviews
Review for Cure Vcp Disease Inc, Americus, GA, USA
I’ve been involved with Cure VCP Disease since its inception. Patient advocacy is so very important. It has given me hope for a potential treatment. We hosted a patient & caregiver conference prepandemic and have United patients through monthly zoom calls. We have educated many medical professionals about our rare disease. We are working with researchers who have written a Standard of Care paper to assist those medical professionals when following a patient. In less than four years, Cure VCP Disease has made tremendous strides!