My Nonprofit Reviews
Lindsey Virginia C.
57 profile views
1 reviews
Review for Cure Vcp Disease Inc, Americus, GA, USA
I found out about CureVCP through a genetic counselor in 2019. My mother, grandmother, and uncle all died from complications of this disease, so I was getting tested for the mutation. Luckily my test was negative! But I still stay connected with the VCP community for moral support and because my brother tested positive for the mutation. I have faith that this organization will help promote this disease so we can have more research and possible a treatment or even a cure in the future! I love this community!
Role: General Member of the Public