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themattclean

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1 reviews

Review for Cure Vcp Disease Inc, Americus, GA, USA

Rating: 5 stars  

I was diagnosed in 2018, and fortunate that my genetic counselor was familiar with CureVCP.org. I was able to connect with Nathan and Allison soon after and have learned so much from them and the other members. Together, the VCP patients and researchers are finding others, often misdiagnosed, and improving the knowledge base o& this disease’s progression. I am proud to know this team of professionals and advocates, and look forward to participating in the journey to a cure for how ever long it takes!

Role:  Volunteer