My Nonprofit Reviews
Jan Schiferl R.
Review for Cure Vcp Disease Inc, Americus, GA, USA
As a care partner for my husband, the Cure VCP Disease group has helped me to understand the implications of his Inclusion Body Myopathy disease. The group has been supportive and instructional for us while providing an awareness for our family and friends through the website and documented studies and research. I appreciate the informative webinars which help me to assist my husband physically and emotionally, and I enjoy the virtual happy hours which provide open and optimistic conversation. The outstanding coordination by the group of an ongoing natural history study is helping to benefit essential research. The professionalism and collaboration of and by the board and management team is exceptionable.