My Nonprofit Reviews

I am fairly new to CDO having found out this past year my 3 year old daughter has a rare chromosome disorder. I knew from the time she was 4 months old something was “different” about her. Unlike other kids her age, she wasn’t hitting any milestones and would not bear weight on her legs. Fast forward to 13 months old, new doctor(s), therapies etc., we found out through Microarray she has a microdeletion on Chromosome 9 (9q33.1 to be exact). We are still trying to push for further testing to see if maybe she has a rare syndrome but as of now she has Hypotonia, Speech Delay and an Unspecified Muscle Disorder (she struggles with climbing, running and tires out fairly quickly). I am so very glad I ran across CDO and am thankful for the information they provide!