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jsjdavid

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1 reviews

Review for Hydrocephalus Association, Bethesda, MD, USA

Rating: 5 stars  

More than 21 years ago my son was diagnosed with hydrocephalus while I was 34 weeks pregnant. To say that we were shaken to our core is an understatement. And in the year 2000 the internet was not what it is today with mostly scary inaccurate information. The only support we found was the Hydrocephalus Association. They LITERALLY saved us! To physically be able speak to someone who is in your shoes is beyond comforting. I found my son's neuropsychologist through HA. I relied on HA literature for my son's teachers because hydrocephalus is not something you see when you look at him. The "teachers guide to hydrocephalus" was my bible throughout my son's academic years. Even now all of these years later it is still a comfort knowing the Hydrocephalus Association is there for my family if we need them.




Role:  Volunteer